Tag Archives: Research Data

Collaborations, Profiles

Data Sharing and Equity: Sabrina McCutchan, Data Architect

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This post is part of the Research Data Curation Team’s ‘Researcher Highlight’ series.

Equity in Collaboration

The landscape of research and data is enterprising, expansive and diverse. This dynamic is notably visible in the work done at Duke Global Health Institute (DGHI). Collaboration with international partners inherently comes with many challenges. In a conversation with the Duke Research Data Curation team, Sabrina McCutchan of the Research Design and Analysis Core (RDAC) at DGHI shares her thoughts on why data sharing and access is critical to global health research.

Questions of equity must be addressed when discussing research data and scholarship on a global scale. For the DGHI data equity is a priority. International research partners deserve equal access to primary data to better understand what’s happening in their communities, contribute to policy initiatives that support their populations, and support their own professional advancement by publishing in research and medical journals.

 “We work with so many different countries, people groups, and populations around the world that often themselves don’t have access to the same infrastructure, technologies or training in data. It can be challenging to collect quality primary data on their own, but  becomes a little easier in partnership with a big research institution like Duke.”

Collaborations like the Adolescent Mental Health in Africa Network Initiative (AMANI) demonstrate the significance of data sharing. AMANI is led by Dr. Dorothy Dow of DGHI, Dr. Lukoye Atwoli of Moi University School of Medicine, and Dr. Sylvia Kaaya of Muhimbili University of Health and Allied Sciences (MUHAS) and involves participating researchers from academic and medical institutions in South Africa, Kenya, and Tanzania.

Why Share Data?

As a Data Architect, Sabrina is available to support DGHI in achieving their data sharing goals. She takes a holistic approach to identifying areas where the team needs data support. Considering at each stage of the project lifecycle how system design and data architecture will influence how data can be shared. This may entail drafting informed consent documents, developing strategies for de-identification, curating and managing data, or discovering solutions for data storage and publishing. For instance, in collaboration with CDVS Research Data Management Consultants, Sabrina has helped AMANI create a Dataverse to enable sharing restricted access health data for international junior researchers. Data from one of DGHI’s studies are also available in the Duke Research Data Repository.

“All of these components are interconnected to each other. You really need to think about what are going to be the impacts of a decision made early in the process of gathering data for this study further downstream when we’re analyzing that data and publishing findings from it.”

Reproducibility is another reason that sharing and publishing data is important to Sabrina. DGHI wants to increase data availability in accordance with FAIR principles so other researchers can independently verify, reproduce, and iterate on their work. This supports peers and contributes to the advancement of the field. Publishing data in an open repository can also increase their reach and impact. DGHI is also currently examining how to incorporate the CARE principles and other frameworks for ethical data sharing within their international collaborations.

Global collaborations in research are vital in these times. Sabrina advises that it’s important for researchers, especially Principal Investigators, to think holistically about research projects. For example, thinking about data sharing at the very beginning of the project and writing consent forms that support what they hope to do with the data. Equitable practices paired with data sharing create opportunities for greater discovery and progress in research.

 

Behind the Scenes, Duke Digital Repository, First Wednesday

September scale-up: promoting the DDR and associated services to faculty and students

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It’s September, and Duke students aren’t the only folks on campus in back-to-school mode. On the contrary, we here at the Duke Digital Repository are gearing up to begin promoting our research data curation services in real earnest. Over the last eight months, our four new research data staff have been busy getting to know the campus and the libraries, getting to know the repository itself and the tools we’re working with, and establishing a workflow. Now we’re ready to begin actively recruiting research data depositors!

As our colleagues in Data and Visualization Services noted in a presentation just last week, we’re aiming to scale up our data services in a big way by engaging researchers at all stages of the research lifecycle, not just at the very end of a research project. We hope to make this effort a two-front one. Through a series of ongoing workshops and consultations, the Research Data Management Consultants aspire to help researchers develop better data management habits and take the longterm preservation and re-use of their data into account when designing a project or applying for grants. On the back-end of things, the Content Analysts will be able to carry out many of the manual tasks that facilitate that longterm preservation and re-use, and are beginning to think about ways in which to tweak our existing software to better accommodate the needs of capital-D Data.

This past spring, the Data Management Consultants carried out a series of workshops intending to help researchers navigate the often muddy waters of data management and data sharing; topics ranged from available and useful tools to the occasionally thorny process of obtaining consent for–and the re-use of–data from human subjects.

Looking forward to the fall, the RDM consultants are planning another series of workshops to expand on the sessions given in the spring, covering new tools and strategies for managing research output. One of the tools we’re most excited to share is the Open Science Framework (OSF) for Institutions, which Duke joined just this spring. OSF is a powerful project management tool that helps promote transparency in research and allows scholars to associate their work and projects with Duke.

On the back-end of things, much work has been done to shore up our existing workflows, and a number of policies–both internal and external–have been met with approval by the Repository Program Committee. The Content Analysts continue to become more familiar with the available repository tools, while weighing in on ways in which we can make the software work better. The better part of the summer was devoted to collecting and analyzing requirements from research data stakeholders (among others), and we hope to put those needs in the development spotlight later this fall.

All of this is to say: we’re ready for it, so bring us your data!